Leoś entered the world on New Year’s Eve — a perfect, healthy little miracle who brought his family hope, joy, and a beautiful beginning to the year. But just three months later, everything changed. What should have been an ordinary day turned into a nightmare when Leoś experienced his first terrifying seizure. In an instant, his parents’ world collapsed into fear, uncertainty, and frantic hospital visits.
Doctors soon delivered a series of diagnoses no family should ever hear. First came drug-resistant epilepsy, a condition where medication fails to control seizures. Then strabismus and low muscle tone, each adding new challenges to his everyday life. Finally, genetic tests revealed the rare and devastating truth: a mutation in the TBC1D24 gene, known to cause uncontrolled seizures, developmental delays, and lifelong disabilities.
For Leoś, every seizure is not just a moment of danger — it is a setback. A lost skill. A step backward in a journey that is already unimaginably hard. He cannot develop like other children without constant therapy, medical monitoring, and specialized treatments that must continue day after day, month after month.
But the cost of this care is overwhelming.
While his parents fight beside him with unwavering love, the financial strain grows heavier with each new therapy session, each hospitalization, each medication trial. They are watching their son battle a condition they cannot cure — only manage — and the resources needed to give him a chance at progress are far beyond their reach.
Still, Leoś fights. Every day, with every tiny movement, every small victory, he shows a strength far greater than his fragile body suggests.
His battle is only beginning — and he needs hope, support, and the kindness of others to carry him forward.